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Public Datasets

Publicly available datasets are those that contain data that are available to anyone regardless of occupation, purpose, or affiliation, and have legitimately attained such status; i.e., those individuals who are responsible for posting the dataset had legitimate access to the data and have employed the necessary mechanisms to ensure the privacy and confidentiality of the individuals about whom the data were collected. In general, while the use of such data may meet the regulatory definition of research, the definition of human subjects is not met because data about a living person is not obtained through interaction or intervention, and no private, identifiable information about a living individual is obtained.

The HSC has reviewed the datasets listed below and determined that they meet the criteria for “publicly available datasets.” However, many of the datasets listed have a publicly available component and a restricted use component. The use of data from these UNA HSC-approved public data sets is not considered human subject research as long as the following two criteria are met:

  • Research will NOT involve merging any of the data sets in such a way that individuals might be identified
  • Researcher will NOT enhance the public data set with identifiable, or potentially identifiable data

If the two criteria above are met and the research will involve data from a dataset listed below, no UNA HSC review or approval is needed. If both criteria are not met, HSC review is required.

Site of Data

Data Set

Bureau of Labor Statistics

http://www.bls.gov/nls/home.htm
Public-Use Data Files Only – excludes restricted and geo-coded/zip code datasets

  • National Longitudinal Survey of Youth 1997 (NLSY97)
  • National Longitudinal Survey of Youth 1979 (NLSY79)
  • NLSY79 Children and Young Adults
  • National Longitudinal Survey of Young Women and Mature Women (NLSW)
  • National Longitudinal Survey of Young Men and Older Men

American Time Use Survey (ATUS)   

Inter-University Consortium for Political and Social Research (ICPSR)

Public-Use Data Files Only – excludes restricted and enclave datasets

National Center for Health Statistics
   

Public-Use Data Files and Documentation links to:  

  • NHANES: National Health and Nutrition Examination Survey
  • NHCS: National Health Care Survey
  • NIS: National Immunization Survey
  • NHIS: National Health Interview Survey
  • LSOA: Longitudinal Studies of Aging
  • NSFG: National Survey of Family Growth
  • SLAITS: State & Local Area Integrated Telephone Survey
  • NVSS: National Vital Statistics System

American College of Surgeons (ACS)
   

National Trauma Data Bank (NTDB)

American College of Surgeons National Surgical Quality Improvement Program (ACS-NSQIP) Participant Use Data File   

National Center for Education Statistics (NCES)

Public-Use Data Files including, but not limited to:
School Survey on Crime and Safety (SSOCS)

Centers for Disease Control (CDC)
   

Behavioral Risk Factor Surveillance System (BRFSS)

Youth Risk Behavioral Survey Study (YRBSS)   

National Ambulatory Medical Care Survey (NAMCS) and
National Hospital Ambulatory Medical Care Survey (NHAMCS)
    http://www.cdc.gov/nchs/ahcd/about_ahcd.htm

U.S. Department of Energy (DOE)

Comprehensive Epidemiologic Data Resource   

Agency for Healthcare Research and Quality (AHRQ)  

National Data Archive on Child Abuse and Neglect  

National Survey of Child and Adolescent Well-Being (NSCAW – General Use Files Only)
National Study of the Incidence of Child Abuse and Neglect   

UK Data Service - Longitudinal

Public-Use Data Files Only – excludes restricted and geo-coded/zip code datasets   

Data Resource Center for Child & Adolescent Health
 

National Survey of Children’s Health (NSCH)

National Survey of Children with Special Health Care Needs (NS-CSHCN)

International HapMap Project

1000 Genomes Project

U.S. Bureau of the Census

U.S. Bureau of Labor Statistics

Roper Center for Public Opinion Research

The Panel Study of Income Dynamics 

Public-Use Data Files Only – excludes restricted datasets​

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